Background:
With the focus of treatment centres primarily directed towards patients, the supportive care needs of carers and family members are often left inadequately addressed. Recent literature points to a range of unmet needs for carer populations such as information, uncertainty, loss and role changes. A review of the brain tumour support group was the impetus for the development of a carer support program at Austin Health in 2010. A pilot group exclusively for carers, to be held in the evening was recommended.
Methods:
“Supporting Someone with Cancer” (SSWC) programs are open groups, operating from 5.30 – 8pm, including refreshments. The sessions provide information and facilitated discussions based on themes identified by carer feedback. Two staff facilitate each program. Initially bi-monthly, the program is now offered monthly due to carer demand. Sessions alternate between themed guest speakers and general discussion over a meal; “kitchen table wisdom”. Sessions are evaluated via survey following each session.
Results:
Since early 2011, 14 SSWC programs have been run. 197 carers has participated, with a wide spread of ages and mix of gender. The brain tumour population is highly represented (>65%) due to the engagement of a care coordinator and high carer burden associated with this illness. Overwhelmingly, the most valuable aspect for participants was the opportunity to meet and talk with others in a similar situation, even if that wasn’t their stated aim for attendance. Specifically targeted session such as “Demystifying Palliative Care” gives participants the chance to enquire in a safe and nurturing environment.
Conclusion:
“Supporting Someone with Cancer” is now an integral part of the Wellness and Supportive Care program at ONJCWC, with continued strong attendance. Further research is planned, focusing more directly on the impacts and meaning of this group, and the role it plays in supporting carers.